Professor Mother Blog

January 24, 2012

Fighting Fog

Filed under: Bipolar,Gifted,Home Things,Medication issues,Tourette's Syndrome — profmother @ 12:14 am

This evening, holding my son- who has been quiet and subdued all evening.  

Me: What’s wrong, Ray?

silence.

Me: Anything you want to talk about?

silence- the silence gets to me.  It’s not a loaded silence.  Just a still.  

Ray: What do you want to talk about?

Me: Any words in your head?

Ray: No

Me: Any feelings in your head?

Ray: No

silence

Me: If you were a color, what color would you be?

Ray: Gray

Me: If you were a shape, what shape would you be?

Ray: A sphere

Me: If you were weather, what kind of weather would you be?

Ray: A cloud

Me: A stormy cloud, a gray cloud, or a big puffy cloud?

Ray: A rain cloud.

Silence. 

Me: What does the rain cloud want to do?  Feel better?  Get some sleep?  Feel happy?

Ray: You know.

***************

The problem is that I don’t know.  I’m never quite sure what son I’m going to have on a day-to-day basis: Do we get the angry, resistant, black mood Ray; the quiet, not-really-there Ray; the run-around and talk a mile-a-minute Ray; the anxious and wring his hands Ray, the focused scholar and look-how-smart-I-am Ray?  While all kids go through “moods”, his are intense.  Even when he’s gray.

Jess, from Diary of a Mom, talks about fighting “dragons with rubber swords”.  I feel like I’m fighting fog with pointed sticks.  We have the “stick” of medication, which nibbles around the edges of issues- creating other issues in the wake.   We have the pointed stick of therapy, in which he refuses to engage- or worse, pretends to be completely normal (a play therapist told us that it was our problem, not his when he was 4).  We have safety and structure in our house, which leads to agoraphobia.  We sortof have labels: Anxiety Disorder, mild Tourette’s, mild giftedness, not quite autism, not quite bipolar, not schizophrenia. In dark times, James and I have to remind each other- he has special needs.  And just because there’s no good label doesn’t mean that the needs aren’t there.

I’m grateful for many things: I’m grateful that he has never tried to hurt himself or anyone or anything.  I’m grateful that he has never talked about not wanting to be here.  I’m grateful that he’s smart and funny and that he can do academics well enough that everyone around him is frustrated that he’s underachieving- but not failing.  I’m grateful that he has a few good friends.  I’m grateful that I have enough background to have consistency, behavior charts, and metaphors to help him.

But I’m terrified.   I feel like I’m keeping him from falling off the edge through pure will- and he’s only 9.  I’m terrified of adolescence.  I’m terrified of his genetics.  I’m terrified of losing my child to alcoholism, to suicide, to a place where he won’t let us help him. I’m terrified to speak possibilities aloud for fear of them coming true.

And I don’t know what to do about the monsters in the fog that never quite reveal themselves enough to fight.  If you can’t see something well enough to fight, it can’t be vanquished.  It just shifts and morphs.

Into the gray.

Ray, I have no idea what to do.  But I’ll do anything to help you.

September 8, 2011

Becoming History

Filed under: Home Things,Schools — profmother @ 7:04 pm

Where were you when the world stopped turning on that September day?
Were you teaching a class full of innocent children
Or driving down some cold interstate?
Did you feel guilty ’cause you’re a survivor
In a crowded room did you feel alone?
Did you call up your mother and tell her you loved her?
Did you dust off that Bible at home?

—Alan Jackson

I didn’t know anyone who died in September 11th.  We know people who knew people, and we know one man who missed American Flight 77- the one from Dulles that crashed into the Pentagon.  He missed the flight because he had just received a phone call from his wife telling him that she was pregnant with their first child- a child who is now my son’s best friend.  But we were not directly impacted.

We have stories, though- along with all of the Americans that day- we all know where we were, what we were doing when we first heard, or saw it.  The horror of that day- and the shared horror of it- are all seared into our awareness of ourselves as Americans.  Such moments are called “flashbulb moments” as we remember clearly exactly where we were and what we were doing because of the intensity of the emotion. I’ve been listening to other people’s stories this week- along with so many others- and I read the stories in the newspaper and online.  In the words of Alan Jackson, “Where were you when the world stopped turning?”  We are grieving as a collective nation share our individual stories.

My children are 15 months apart- Elizabeth born in March, 2001 and Ray born in June, 2002.  They have hit developmental milestones very close together.  They learned how to talk by talking to each other.  They both learned how to ride a bike together.  They both started loving and then hating Barney at the same time.  We call them the “Almost Twins”.

But that day, September 11th, separates them.  Elizabeth was there.  She was the baby we held on to tightly that terrible, terrible day and the quiet, horrible days afterwards.  Ray… Ray was perhaps a result of September 11th as I forgot my medications- all of my medications- that week, and James and I held tightly to each other.  He was part of a little “baby boomlet” that occurred in June and July of 2002.  September 11th is a dark demarcation line between the shared childhoods of my children.

Last weekend, in rememberance of the 10 year anniversary, I started educating them about September 11th.  I wanted them to know.  We watched “United Flight 93” and “World Trade Center“, and we talked about it.  It was an… odd experience.

Elizabeth wanted to know exactly what she was doing on that day.  “Chewing your toes” wasn’t the answer she was looking for, and so she kept asking- hoping that somehow the gravity and horror of the day would have been recognized by an infant.  She wanted to add her part to the stories that our friends and I have been sharing around the dinner table or in quiet moments. She wants it to be recognized that she was there, too.

Ray wasn’t there and felt left out.  He wanted to talk about the facts and the details of the planes and the process.  He wanted to know the fear and the panic of those who were on the planes and in the Towers, but he was much less interested in the experience of us, those who weren’t directly impacted.  He wanted to understand it as a movie, as a documentary.  As something that was real, but not personal.

Seeing the difference in my two children, I began to think about history- and the way we understand history.  Every generation has their “horrible” moment- a moment where everyone at that point knew where they were.  For this generation, it was September 11th.  For my parents’, the assasination of JFK. For my grandparents, the bombing of Pearl Harbor.  Moments at which fear and anxiety and a need to come together and grieve and appreciate life are shared by an entire country.  Moments of pure living that remind us of how tenuous living can be.  Moments that shaped history.

I have always loved history.  I love reading historical novels; I love going to historical places; and I love getting to understand how and why people were like at different times.  I can’t go visit battlefields because I can sense the horror and the fear that still lingers around places that are calm and peaceful now.

And yet, I have no direct feelings about the assasination of JFK.  I can watch movies and think “Oh how awful that must have been“, but it’s theoretical.  It’s from a long time ago.  And they dressed funny.     It’s not disrespect.  It’s not lack of imagination.   It’s just that it’s not my reality.  They aren’t my emotions.  It’s history.

For Ray, there have never been Twin Towers.  He can look at my pictures of my first visit to New York with the Towers in the background, and they’re from a long time ago when people dressed funny.  I cried at the memory of that day as I watched the movies.  He wanted to know what happened afterwards.

September 11th is a 5th grade standard in the Georgia Performance Social Studies Standards.  It’s in there along with the Civil War, World War I, Vietnam and the Cold War.  This year’s fifth grade class is the last class who was alive on that day- and they were infants.

September 11th is a dark demarcation line between the shared childhoods of my children.  It’s a line between my life and my son’s.  It was my reality… and next year, when Ray is in fifth grade, September 11th will truly start to become history.

*********

There is a poem by Carl Sandberg that expresses this better than I can.  I grieve, and I respect and honor those who lost loved ones.  And in my child, I see the Grass beginning to grow…

Pile the bodies high at Austerlitz and Waterloo,
Shovel them under and let me work–I am the grass; I cover all. 
And pile them high at Gettysburg
And pile them high at Ypres and Verdun.
Shovel them under and let me work.
Two years, ten years, and passengers ask the conductor:What place is this?Where are we now? 
I am the grass.
Let me work

– Carl Sandberg

September 6, 2011

Memory Quilt

Filed under: Home Things — profmother @ 9:10 am

This Labor Day, I spent an hour up on a ladder, finding four large boxes stored in the garage closet with Elizabeth, who was helping me in a project planned for a decade.

When Elizabeth was a baby and started outgrowing her baby clothes, there were some that I just couldn’t give away.  I couldn’t pack them up in the plastic garbage sacks and haul them off to Goodwill for some stranger to look at with a critical eye.  Those other people might not be able to see:

  • How precious that faded little blue jean dress was- the one Elizabeth wore when she was six months old,  and sitting next to her teddy bear who was the same size she was- and she was still wearing when she welcomed her new baby brother home.  
  • They wouldn’t understand how sweet the smell of fuzzy white footie pajamas with just a hint of sweet potato stain on the collar is- the perfect combination of Tide and Johnson’s baby shampooed little girl.  
  • And strangers definitely wouldn’t appreciate the newborn onesie with the little pink hearts on it that was the bane of my existence to snap up correctly and James never did manage to fasten correctly.  

I just couldn’t give them to Goodwill.  And since I was pregnant again when Elizabeth was six months old, maybe I would keep them for our next little girl.

Only the next baby was Ray- and onesies with hearts on them were not really considered acceptable.  And so, they stayed in their bag.  To be joined along the way by:

  • That sweet green dress in which Elizabeth hopped around the lawns of the lighthouse at St. Augustine when she was 18 months, laughing so hard that her tow-headed curls shook with her.  
  • And I just had to add the pink-and-white  Oshkosh overall dress when she was 2 -that was a larger version of the dress we brought her home in- and she wore everywhere for a year.  The original dress went in the bag, too.  
  • And the coat that she got when we visited Mamamum for a fall weekend that had little Pooh ears on the hood and she kept petting over and over.  She wore it three more times that winter in Florida- and every time the sweetness of my baby took my breath away.

The bag became a box the summer Ray was two, because we were moving, and I had to go through his baby clothes as well.  I scoured the clothes that were too small to leave behind, to give to Goodwill, to hand down to friends.  But I found myself smiling at the tiny Hawaiian shirt that reflected the blue snap in my son’s laughing eyes, and I couldn’t let those moments go.  The box metamorphed into a bin.

And so, I decided on a Project.  A Project that I would get to- someday.  Someday when we stopped moving.  Someday when I wasn’t starting a new job.  Someday when I wasn’t researching about autism, writing about autism, or presenting about autism.  Someday…I would turn all of those wonderful baby moments captured in these clothes into a quilt- one for each child- so that they could take a part of those moments with them.

I love quilting.  I haven’t quilted in 12 years because I hand-sew- each square, each whorl, each section I stitch by hand.  It takes me a year to make a quilt and I’ve only made three.  I don’t sew for the final product.  I sew for the joy of the doing.  But sewing a quilt takes time.  And time for a quilt would be something that I would have… someday.

I realized last week, that, amazingly, Someday was here.  This fall, for the first time in 10 years, I am not up to my eyebrows in some project.  My book is turned in, I know what I’m teaching and I’m merely tinkering with the classes, and the children are in the same school they’ve been in for three years.  No one is dying.  We’re not moving.  We have time to deal with small things, big things.  We have time to be.  I’ll be doing some traveling and some consulting and I can sew on the plane.  And I have time for the first time in a decade to get out the boxes- grown now to 4 large bins.

Four large plastic Rubbermaid tubs that have been dragged with us through 8 houses, 5 states, a summer in limbo in a storage unit, a tornado, and even a fire.  They take up a good chunk of a closet in our garage.  And they were brought down this past Monday with the help of my 10-year old baby who was strong enough to lift them and carry them inside the house.

I found out, that despite my good intentions, and the new sewing basket from Michaels, that I still couldn’t do it.  Elizabeth and I unpacked those dresses and those onesies and those smocked Christmas dresses and I just couldn’t lay scissors to them.  It rained hard as we got the edges of Tropical Storm Lee, and I told stories. I told stories of “Oh, you wore this when…” and “At this age, you were…”, and “Remember that picture when you were wearing this?”  Elizabeth carefully examined and folded each smock, each dress and each footie pajama and repeated like a mantra, “What was I doing in this one?”, as if each one connected her with her past- a past in which she was loved and adored and there was always laughter.  A past with no ghosts, no sorrow, no autism and no issues- a past that was only full of joy.  We reveled in the memories of her babyhood- the best parts that are all I want to remember.

I have some things for the quilt.  I have some of the baby blankets and some dresses with vivid colors and patterns.  I have a couple of swim suits.  But the yellow swim suit in size 6 months that had lemon patterns on the shoulders and the matching hat?  How on earth could a little yellow square capture the memory of her sitting in her play pool on our back deck in her bouncy chair as she kicked the water with laughing squeals?  Elizabeth pointed out that her baby doll, the original Lily (they’re all named Lily.  We just have Lily 1, Lily 2, etc.) would be able to wear most of the clothes.  So the little yellow swim suit with lemons on the shoulder went into “Lily’s Bin”.  

  • So did the red velvet dress with the white lace collar that she wore her first Christmas.  
  • And the darling pink and white gingham dress with the big strawberries on the pockets into which she would stop and put things on our walks.  
  • And the jean jacket with the red and white checked ruffles that she wore on her first airplane trip to Seattle.  

I looked at each article of clothing and fell in love with my daughter all over again.  She looked at each article of clothing and began to construct her sense of today with herself from yesterday.

I finally decided that a quilt just can’t capture those moments- small bits of fabric with the edges sheared off.  With Elizabeth’s assistance, we packed almost everything back into three of the tubs- rechristened “Lily’s Tubs”.  They went back into the closet, with the assurances that they would be used to dress up her doll, or to be worn with her own daughter.  Someday.  I can’t help but wonder where we’ll be dragging those tubs to next.  I know that my husband and my mother will roll their eyes at Elizabeth and me as we find space in our crowded house for 3 tubs of outgrown clothing.

I will still make a quilt of the fabrics that evoke memory through its pattern or its texture.  I will still work on this project that is 10 years in the making.  But I have a clearer understanding that sometimes, memory is formed by the details.

June 30, 2011

Expanding and Tethering

Filed under: Autism,Gifted,Home Things,Twice-exceptional — profmother @ 8:48 pm

Last night, for the first time ever, I put my little girl, my baby, my first-born, on a plane that took her across the ocean- far, far away from me. And for the first time, I understood what my mother felt when she hugged me goodbye as I took my first steps away from her. My daughter may be across the ocean, but I am tethered to her in a way I never quite understood before.

Back in January, I was looking for ways to celebrate James’ 50th birthday. “0″ birthdays are big deals in our family.  I was playing with the idea of using fabulous deals available on travelzoo.com, a site that is designed to torture me.  And then… the car died.  Big bills came due.  Money became tighter.  So- no family trip to Ireland or San Diego, or really even Disney, a relatively close 3 hours away.  At the same time, Vicki decided to go and visit her uncle who is a scientist at Cambridge… in England.. for a month.  And she invited all of us to go… All of us.  For a month.

Heck, YES!  An opportunity to stay in England for FREE?!  I was all over that- until I looked at airline prices.  For all of us.  Which, given our financial limitations, meant that there was enough money for… one.

I briefly considered going.  Running away from it all, leaving the children, leaving James to take care of them.  For a month.  Leaving autism and Tourette’s and tantrums and book due dates and deadlines and…. all of behind… for a month.  Far away- across the sea…. ahhhh.

And the responsible mommy, the one who adores her children, the one who knows that such a break would break too much had to decline. But I could give Elizabeth the opportunity.

For Elizabeth, you see, is a traveler.  She has been on planes since was 3 months old.  She adores the planning, the organization, the feeling of airplanes.  New places do not scare her.  I have distinct memories of her interpreting the symbols in Switzerland and navigating us through the maze of an international airport.  At the age of 3.  She can filter out noise and extraneous “stuff” and find the important details.  Similar to her abilities with hidden pictures and puzzles, she is able to visually locate and identify what she wants to find.  In so many ways, autism works for her now and highlights her abilities.

For months, she and Vicki have been planning this.  She was excited that she would miss the 4th of July- fireworks are not her thing.  They will go punting on the Thames.  They will take tea. They’ll go see Phantom of the Opera- live- in London.  They’re going to see “Much Ado About Nothing”- at the Globe Theater.  And then, Vicki found an opportunity to go to Paris.  As in, not Texas.  As in France.  Paris- the romance of it is just amazing.  I found Grace Potter’s song “Ooo la la” to become her anthem.    And they’re going over Bastille Day- which means that Elizabeth won’t miss the fireworks- they’ll just be in a French accent.  She’s been practicing French- badly, but learning that there are different ways to say “Hello”.  I am now “Maman”.

I have marveled watching her expand her horizons.  So many people have asked me “How could you let her go?” and my response has always been, “How could I not let her go?”  I trust Vicki a whole lot more than I would trust some sleep-away camp counselor.  Vicki understands her need to sleep, her need to reduce stimulation when she’s overwhelmed, her need to plan and have structure. And it’s LONDON!  And PARIS!!   It’s a once-in-a-lifetime opportunity.  And I’ve been battling wild envy at the same time that I’m feeling so grateful that my daughter has come this far that she can do this- and that the opportunity came at a time when she is ready to learn about a bigger world.  I can’t allow my own fears to get in the way of her growing up.

I helped her pack, full of pride, full of joy, tinged with “Can I go, too?” and a small dribble of sadness at missing her.  So many people expressed that they would be afraid; that they would be lonely; that they couldn’t let their daughter go.

Somehow, I am strangely not anxious.  I realized why when I was hugging her goodbye, and I realized that I was acting like my mother- and I finally understand the mix of emotions.

**********

When I was 10 years old, I spent two weeks with my father, my step-mother, and my half-brother. I went off for the longest I had ever been away from home.  I was nervous, but it ended up being a lovely summer of learning how to play tennis, learning that you can drink tea with cream, the movies “Bedknobs and Broomsticks” and “Superman”, and staring in the mirror with my brother as we marveled over how similar our faces were.  I got letters from my mother almost every day- letters that were full of the small details of our home.  Stories about the cat, stories about the weather.  Stories that let me know that she loved me, she was thinking of me, and that I always had a place at home.  Even as I was exploring new places, I always had a place of my own.  That level of security grounded me.  It never occurred to me that my mother was very consciously letting me explore at my own pace.

****

As I followed Elizabeth and Vicki at the airport last night- close, but not hovering; there if she needed me, but far enough away to let her try it on her own, I realized I must be feeling what my mother felt.  It’s the same feeling I had when I let her climb the slide at 10 months old- surrounding her with my arms, but not touching.  Letting her know that I was there if she fell, but that she could stretch and explore at the same time.  I was alert; I was proud, but I was never really scared because I knew that she would be all right.  We are tethered together in such a way that mere distance- whether it’s inches from the almost-a-toddler as she crawls up a slide ladder, or across an ocean from the almost-a-teenager- cannot disconnect me from my baby, or my baby from her place.

All day today, I have been aware of her- not her absence, but her presence… elsewhere.  ”Oh, now she’s landing.”  ”They must be getting on the train now.” I can sense her tiredness, her clinginess to Vicki and her interest in everything she’s seeing.  I can sense her need to hold on to Bunny, her stuffed pink bunny, and Bear, her stuffed pink bear (names have never been her strength).  I have been sending her “Mama’s here.  Mama’s always here” feelings all day.  She’s tired; she’s inundated with the newness- but she’s not overwhelmed.  She’s with Vicki, and she’s with Bear- and I’m there for her when she needs to reach out to me.  We’re tethered, but not tied.

Instead of letters like my mother wrote, I send her emails.  Instead of phone calls, we Facetime.  Technology may change, but not the mother instinct – that remains constant.

So- to my mother- I get it now.  I get it that our job as a parent is to let them explore their world, while letting them know that we are always there for them.  To quote the old phrase, for giving me- and now her- “wings with which to fly and roots from which to grow”.  Thank you for giving me that- and giving me a role model to let my daughter explore the slide then- and Paris now.

But I have to admit, I do miss her. And I really, really wish I could experience Paris with her.  

*************

If you want to read about her adventures, she’s blogging them at http://allieinternational.wordpress.com.  I may be a proud, scared, slightly envious mommy, but I’m still a teacher!

June 1, 2011

39 Clues About Who is the Worst Mommy in the World

Filed under: Home Things,Uncategorized — profmother @ 2:44 pm

I win the Worst Mommy in the World Award- at least, according to my son.  Turns out, however, it’s an award that several moms around here share.

I win this coveted award because school ended last Friday- and I started requiring the children to read for half an hour and do math for half an hour before they can go and play with friends, watch TV or get on the computer on Tuesday.  Last year, I had all kinds of plans- wonderfully structured and interesting summer lessons in language arts and math.  Complete with mini-field trips.  It was a wonderful plan- and it worked- for about a week.  Summer school classes that I was teaching, camp, and visits soon ended our formal summer learning.

One of the things that frustrates me to no end is that I LOVE teaching- I love devising activities for kids to engage in the material, I love making kids think, and I fancy that I’m pretty good explaining things- and my son (and daughter to a lesser extent) will have none of it.  ”NO!” is the feedback I get when I suggest “What if we try it this way?”  ”That’s not the way Ms.-So -Much -Smarter -Than -Mommy -Because -She’s -A -REAL -3/4th -Grade -Teacher does it” is the other favorite retort.  My reply of “You know, I used to teach 3rd/4th grade” gives me a little credibility, but not much.  But when I try to create an experience, take them beyond, or even explain, I get resistance.  A LOT of resistance.

So, our plans this summer are much simpler- much less dependent on Mommy and more dependent on the workbook.  I hate it, but at least the workbook is on Singapore Math and at least I can drop in small amounts of instruction.

And- it turns out, Abel- Ray’s new best buddy’s- Mom is doing something quite similar.  So, we got our heads together, and Ray and Abel are going to be reading the 39 Clues series together.  The boy in the series, Dan, is active, anxious, and good at math.  The series is written by a group of male authors (Rick Riordan is one of them!) who wrote a continuing series.  I read the first one and got completely hooked.  If the boys were in my class, I would totally have them start writing their own continuing story, starting with their own adventures.

But of course, I can’t- I’m only Mommy.  And the Worst Mommy in the World, at that.  It’s an award I treasure this summer, as I watch my son learn that friends can share even adventure stories together.

March 28, 2011

Complaint of a Gifted Child

Filed under: Home Things,Schools — profmother @ 6:15 pm

Ray just posted his new blog… I warned him of the consequences, but he said, and I quote “Oh bring it on!”.  This, folks, is a twice-exceptional child…   Wanting challenge- but aware of what is hard for him.  Miss H- please be kind to his poor mom who has to help him with all of this…

March 21, 2011

“0″ Birthdays

Filed under: Home Things — profmother @ 9:02 am

My husband is 50 today.  50!  A few short weeks after my daughter turned 10. 10!

Elizabeth was two weeks old when James turned 40.  I was so fried from the demands of a newborn and the intensity of feeding, fussing, jaundice and no sleep, I stuck a pink bow on her head and called it “Happy birthday”.  I claimed that I gave him his first child for his 40th birthday- and really, there’s no better present than that!

We celebrate “0″ birthdays- big.  When I turned 30, I was in Williamsburg, and had a huge party with all of my friends there from graduate school.  I danced in a dress from Mexico- all flounces and color.  Pictures show me with stars in my eyes, glowing with happiness.  James and I had met three months before, I was in love, and surrounded by new romance, friends, and sense of direction.  It was an amazing birthday.

When James turned 40, we were in Fort Myers, FL.  I gave him a daughter.  Pictures show us with circles of exhaustion under our eyes, I’m still in pajamas- the same ones I wore for a week straight, I think.  My mother was there and she was holding us together in those first days of new parenthood.  But we were alight with the joy- and the anxiety- of the future.  It was an amazing birthday.

When I turned 40, I celebrated by having most of my very close girlfriends meet me on the Outer Banks of North Carolina-including my mother and my daughter!- where we walked the beach, had massages and pedicures, watched mama foxes scout ahead for her kits, and talked until late into the night.  We talked of how our directions were changing, how the future was different than we expected, but how important friendship and love really were.  It was an amazing birthday.

And now… now Elizabeth and James have “0″ birthdays in the same year.  And this year- full of anxiety and challenges-… these birthdays are promises.  Promises that I hope we can keep sooner, rather than later.  Promises of traveling- going to England and watching Manchester United play a game- a real one- at Old Trafford Stadium, rather than merely watching on TV.  Promises of “stopping by ” Paris- since we’re over there, anyways, so that Elizabeth can see the Eiffel Tower- the real one.  Promises that were so close to reality… but aren’t.. yet.

Instead, Elizabeth got a card with a picture of the Eiffel Tower, and James got a card with a picture of the very hotel we’re going to stay in Manchester.  Elizabeth invited 5 of her friends over for a manicure/pedicure/ sleepover night- which, while it wasn’t quite as challenging as last year, still had its challenges.  Challenge that are not new ones- ones that some down time, some quiet time can solve.  Really- not even worth talking about.  It’s been 10 years of learned lessons.  But there were pancakes and presents and lots of giggling and a shared joke of “single digit midget… OH, double digit midget!”  And Red Velvet Cake.

And James will enjoy dinner at home in Georgia with my Chinese Chicken after a long week of traveling- with his family and we will have balloons and singing and posters and pictures of Old Trafford Stadium- and Lemon Cake.  And promises of not now- but soon.  Perhaps in time for Ray’s “0″ birthday next year.

No matter where we are, there are friends, and family and love surrounding us all.  And even though autism and Tourette’s are uninvited guests, this year, they are well-mannered, mostly staying in the backgrounds where we accommodate around them.

Amazing birthdays. (And look out Eiffel Tower- we’ll get there! And please forgive me a little bit of pouting)

March 19, 2011

Lost, But Making Good Time

Filed under: Home Things,Schools — profmother @ 10:44 am

We’re lost- but we’re making good time! Billy Crystal in City Slickers- originally by Yogi Berra

Do you see this photo?  The one lane, rutted dirt road that led away from the washed out bridge and then consequently led to a series of switch-back one-lane tractor tracks?  This road that led me round and round through Deliverance country- lined with Walmart mansions and trailers?  AT 5:00 in the morning? This is the road that my TomTom-GPS took me on from Fayetteville, AR to the Rogers XNA airport- which is, on the (visual) map, a few double-lane roads away.  28 miles away.  That took me 1.25 hour to traverse on tractor paths.  This is that road.

I was going home from a long three days of watching teachers try to include kids- kids who needed peers, who needed access to the general curriculum and kids who needed information to be presented in visual ways, or in smaller chunks, or in ways that kept their attention- kids who through no fault of their own needed something different and who needed grownups to teach them in different ways.  And watching teachers who could and did, who couldn’t and didn’t, and everything in between.

After swearing at the Tom-Tom, and jolts of anxiety waking me right up without coffee at 4:30am and praying, praying that the GPS signal did not fade out in the depths of the Ozark mountains, I wound up on a paved road, 1/2 mile from the airport- successful in my path. I was shaking, traumatized, and resolved that I would never again depend on my GPS, but use my own sense of visual awareness to consult a hard copy map.  (A promise quickly broken, btw, as I crossed the state of Georgia looking for the Duluth High School where the state Chess Championship was held- next post!)

As I sat waiting for my flight, I thought about the possible metaphors for my trip- the parental search for treatment for autism- going from one thing to another, going to places you had never dreamed you would find yourself, trusting- and losing trust- in yourself and your sense of direction.  A sense of palpable relief when you find you’ve made forward movement.

I thought about how teachers are in search of strategies to help children, but are lost in a confusing mix of “this is how it’s always been done”, relationships between teachers, confusing directives from administrators, and not seeing themselves and their classrooms on the path, and losing their way.

And of course, I thought of my children as they grow up, and how they will follow certain paths that don’t look like the beaten paths; at how many washed out bridges we’ve found and will find, and how many switching tractor paths they are going to go down as they navigate schools, and relationships and love and…

And as I say there in the airport, waiting for my plane, I finally realized that it didn’t really matter which metaphor I picked.  In the end, we were on our way home.

March 17, 2011

I Don’t Know How She Does It

Filed under: Home Things — profmother @ 7:26 pm

Things fall apart; the centre cannot hold- W.B Yeats- 1919

I just finished reading “I Don’t Know How She Does It” by Allison Pearson and wow… just wow.  It takes place in London and is the story of a working mother with a high-powered job as a financial money manager.  Other than some minor differences (you know, like the issues of flying across the Atlantic on a moment’s notice and discussing how to pick a good nanny), the story was written to aggravate every bone of guilt I have.

Kate is balancing the needs of two children.  She feels guilt at how much she resents her children from taking her away from doing a job she loves- and she resents her job from taking her away from her children.  She goes on vacation and tries to bury herself in the role of perfect mother and wife.  She goes to a board meeting and tries to bury herself in the world of work.  She notes that women are not allowed to be late because of children’s issues- but men are applauded for parenting.  In an excerpt… How do you say you have to leave early because the baby is sick without saying a) baby and b) leave?” “When a man excuses himself from a meeting to attend his son’s game, he is patted on the back and when a woman needs to leave early she is not ‘committed enough’?”

Gender inequities aside, the tension between work and her children is not what you would expect.  She writes in an email,”What kind of mother is afraid of her own children?” She ends up not sending the email because, ”There’s only so much you can confess, even to your dearest friend. Even to yourself.”

And lest you think that I read the book while lolling about, waiting for the children to come home, I read the book in an airport- traveling to San Antonio for a conference, and to visit my dying grandmother for probably the last time- multi-tasking, even in grief.  I read because I was not going to pay for Internet in an airport.  I read it when I knew that my children, while being taken care of by James, would be challenged.  That Ray would not be doing his homework; that Elizabeth’s 4th grade girl dramas would be misunderstood by a busy Daddy; that James would be too busy being one parent that the other role would be missing even more because of its absence.

These past weeks have challenged me: too many observations, things to grade, chapters to write, conference paper to write, homework to help with, laundry to do, pounds to work off- my life is so far off balance, out of normal, that I can’t even see the pivot point.  I vaguely remember writing- I vaguely remember laughing- I vaguely remember… me.

For the reality is that my mothering role is the linchpin that holds my family together- and, as I’ve learned this past month- me.  Without the schedule, the routine, the comfort of tucking them in, listening to their day, and fussing at them for homework- including James in those routines, I lose touch with myself.

It isn’t as though I’ve lost my sense of humor, or my desire to dance, or even my love of all things chocolate, but I’ve lost my sense of timing- the sense of reflection- the sense of planning.  I’ve lost my writing.

Anxiety has been the driver this past month.  The sense of moving from moment to moment and being surprised when I got there.  As I overheard someone say the other day “I don’t know where I am.  I’m whereever my calendar tells me I am.”  While I am not planless, as in the days of diagnosis and treatment, I do find that I am moving from moment to moment just as I moved from therapist’s appointment to therapist’s appointment.

I finished the book while waiting in an another airport to go on a consulting gig- a gig that I needed to do to pay for the new car, the birthday party, the life that we have that is so finely balanced that more than two events in a row throws the whole thing off kilter.

At the end of the book, Kate quits her job and moves to the country.  She points how, when people say “I don’t know how she does it,” there is an implied perception that judgement that something is missing, something is slipping.  Moving to the country is, unfortunately, is not an option we have, and so I wait for the end of March- the end of this slipping, the end of this calendar-driven chaos.  I wait for the center to form again.

February 15, 2011

Hand-icapped

Filed under: Autism,Home Things — profmother @ 1:37 pm

My first mistake was cooking dinner. 

That’s the joke I now give when people ask, with slightly averted eyes at the black, Frankenstein-like stitches sticking out of my finger.  Five of ‘em.  On my left pointer finger. 

It was last Monday- and I was bound and determined to cut the overly not-quite-ripe-enough spaghetti squash for the dish that we had had last month and wonder of all wonders- Ray actually loved.  I’m trying to really focus on making sure that our family eats healthy “stuff” after a free-for-all during the holidays.  So, I’m trying to cut this obnoxious squash with a very good knife- a Christmas present, in fact.  One of those enormous cleavers with lots of serrations.  Perfect for those hard jobs.  Only, because I’m frustrated and I was fussing at the children to do some task, I ended up banging the squash up and down on the counter.  When the knife flew out of the squash.  And glanced my finger on its way down onto the cutting board. 

Rats.  I saw the cut and sighed.  I stopped nagging the children and went to the bathroom where I put a bandaid on it.  Just a little line.  Not really a big deal.  On my left hand- not my writing hand.  And I went back to the kitchen to finish cutting the squash.  Which I did and put it in the oven to roast. 

It was then that I noticed that maybe my finger was hurting a little bit and I looked down to see my finger dripping on the floor.  Large drips.  Back to the bathroom to take the bandaid off to check this out.

And soon, my bathroom looked like a murder scene.  I’m not crazy about blood anyways, and this was… gruesome.  I called for the children.  Something about my voice got them off the couch and they came into the bathroom, where I was holding a gauze pad over my finger.  I was not hysterical.  I was not scared.  Just calm and clear.  “Children, I need your help RIGHT NOW!”. 

And this is where I learned that despite her growth and her progress, I cannot yet count on Elizabeth in a crisis.  She turned pale, turned around immediately and disappeared as far away from me as she could in the house- back in the back corner- where she waited it out. 

Ray, to his credit, stood there and asked for directions with an attitude that only a pre-teen can do.  “Yea.  What?”  He cut surgical tape in pieces for me- throwing away one that was minisculely too short to his eyes, and watched while I wound it around my finger.  I complimented him on his level-headedness.  ”Is that all?” he growled, and went back to his computer game. 

I looked at my gauze-wrapped finger again, and saw that the blood on the pad that I was applying pressure on so firmly was becoming soaked again.  I called my mother- because somehow Mother always knows how bad the hurt is even from a distance.  And so I called James and asked him to come home and take me to Urgent Care.  I turned off the oven.  At Urgent Care, I got lectured on the proper use of knives and that yes, it did need stitches because it was on the knuckle and it was deep, and I began to realize how very, very lucky I was not to lose the finger.  Or cut a nerve.  It hurt, and it needed stitches and it was large and ungainly, but it was still there.

Only, I couldn’t type very well.  I type- a lot.  I type my lesson plans.  I type my lectures onto Power Point slides.  I type on my book and I type to look up recipes.  I type to stay on Facebook and I type to stay in touch with my children’s teachers.  I could sortof type 9-fingered, but it was slow and it was awkward and you make a lot of typos typing 9-fingered.  A lot of typos.  And so, I’ve been hampered all week with my lack of communication.  I’ve let the blog slide and haven’t been on Facebook for a while.  I never realized before how my typing allows me to communicate- to plan- to think- to organize my thoughts.  I’ve been disjointed all week.  I’ve felt isolated. 

Tomorrow I get my stitches out.  Today, I took off the bandages and can move my finger freely and, other than a little pulling, with little pain.  And today, I can type again.  With full appreciation of how important even a finger is to keeping connected with the world.  And I have a far greater appreciation of my own fingers and how difficult it is for others with much, much greater communication issues. 

Elizabeth, with her own communication issues, who was so panicked that she couldn’t help me, has now decided that she’s afraid of knives- to the point of shrinking away from that part of the counter where they are kept and staying away from the dishwasher where they are washed.  This weekend, she moved her chair away from the knife we were using to cut the pizza (even healthy eating needs a break).  She has informed me that she will be having a private chef when she’s a grownup, so that she doesn’t have to work with knives.  She’s creating a phobia right before my eyes. 

I plan to start her rehabilitiation- right after mine.  I think that once my stitches are out and my finger less Frankenstein-y-looking, she’ll be better and I can start to work with her.    A little fear and healthy respect- respect that I regained- is a good thing.  Too much is disabling.  I plan on offering her a little steak in a few weeks- her favorite meal- and do a hand-over-hand therapy session.  Applied Behavior Analysis at its best…

And for the record, we ate the spaghetti squash dish the next day and it was delicious.

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