Professor Mother Blog

March 17, 2011

I Don’t Know How She Does It

Filed under: Home Things — profmother @ 7:26 pm

Things fall apart; the centre cannot hold- W.B Yeats- 1919

I just finished reading “I Don’t Know How She Does It” by Allison Pearson and wow… just wow.  It takes place in London and is the story of a working mother with a high-powered job as a financial money manager.  Other than some minor differences (you know, like the issues of flying across the Atlantic on a moment’s notice and discussing how to pick a good nanny), the story was written to aggravate every bone of guilt I have.

Kate is balancing the needs of two children.  She feels guilt at how much she resents her children from taking her away from doing a job she loves- and she resents her job from taking her away from her children.  She goes on vacation and tries to bury herself in the role of perfect mother and wife.  She goes to a board meeting and tries to bury herself in the world of work.  She notes that women are not allowed to be late because of children’s issues- but men are applauded for parenting.  In an excerpt… How do you say you have to leave early because the baby is sick without saying a) baby and b) leave?” “When a man excuses himself from a meeting to attend his son’s game, he is patted on the back and when a woman needs to leave early she is not ‘committed enough’?”

Gender inequities aside, the tension between work and her children is not what you would expect.  She writes in an email,”What kind of mother is afraid of her own children?” She ends up not sending the email because, ”There’s only so much you can confess, even to your dearest friend. Even to yourself.”

And lest you think that I read the book while lolling about, waiting for the children to come home, I read the book in an airport- traveling to San Antonio for a conference, and to visit my dying grandmother for probably the last time- multi-tasking, even in grief.  I read because I was not going to pay for Internet in an airport.  I read it when I knew that my children, while being taken care of by James, would be challenged.  That Ray would not be doing his homework; that Elizabeth’s 4th grade girl dramas would be misunderstood by a busy Daddy; that James would be too busy being one parent that the other role would be missing even more because of its absence.

These past weeks have challenged me: too many observations, things to grade, chapters to write, conference paper to write, homework to help with, laundry to do, pounds to work off- my life is so far off balance, out of normal, that I can’t even see the pivot point.  I vaguely remember writing- I vaguely remember laughing- I vaguely remember… me.

For the reality is that my mothering role is the linchpin that holds my family together- and, as I’ve learned this past month- me.  Without the schedule, the routine, the comfort of tucking them in, listening to their day, and fussing at them for homework- including James in those routines, I lose touch with myself.

It isn’t as though I’ve lost my sense of humor, or my desire to dance, or even my love of all things chocolate, but I’ve lost my sense of timing- the sense of reflection- the sense of planning.  I’ve lost my writing.

Anxiety has been the driver this past month.  The sense of moving from moment to moment and being surprised when I got there.  As I overheard someone say the other day “I don’t know where I am.  I’m whereever my calendar tells me I am.”  While I am not planless, as in the days of diagnosis and treatment, I do find that I am moving from moment to moment just as I moved from therapist’s appointment to therapist’s appointment.

I finished the book while waiting in an another airport to go on a consulting gig- a gig that I needed to do to pay for the new car, the birthday party, the life that we have that is so finely balanced that more than two events in a row throws the whole thing off kilter.

At the end of the book, Kate quits her job and moves to the country.  She points how, when people say “I don’t know how she does it,” there is an implied perception that judgement that something is missing, something is slipping.  Moving to the country is, unfortunately, is not an option we have, and so I wait for the end of March- the end of this slipping, the end of this calendar-driven chaos.  I wait for the center to form again.

February 15, 2011

Hand-icapped

Filed under: Autism,Home Things — profmother @ 1:37 pm

My first mistake was cooking dinner. 

That’s the joke I now give when people ask, with slightly averted eyes at the black, Frankenstein-like stitches sticking out of my finger.  Five of ‘em.  On my left pointer finger. 

It was last Monday- and I was bound and determined to cut the overly not-quite-ripe-enough spaghetti squash for the dish that we had had last month and wonder of all wonders- Ray actually loved.  I’m trying to really focus on making sure that our family eats healthy “stuff” after a free-for-all during the holidays.  So, I’m trying to cut this obnoxious squash with a very good knife- a Christmas present, in fact.  One of those enormous cleavers with lots of serrations.  Perfect for those hard jobs.  Only, because I’m frustrated and I was fussing at the children to do some task, I ended up banging the squash up and down on the counter.  When the knife flew out of the squash.  And glanced my finger on its way down onto the cutting board. 

Rats.  I saw the cut and sighed.  I stopped nagging the children and went to the bathroom where I put a bandaid on it.  Just a little line.  Not really a big deal.  On my left hand- not my writing hand.  And I went back to the kitchen to finish cutting the squash.  Which I did and put it in the oven to roast. 

It was then that I noticed that maybe my finger was hurting a little bit and I looked down to see my finger dripping on the floor.  Large drips.  Back to the bathroom to take the bandaid off to check this out.

And soon, my bathroom looked like a murder scene.  I’m not crazy about blood anyways, and this was… gruesome.  I called for the children.  Something about my voice got them off the couch and they came into the bathroom, where I was holding a gauze pad over my finger.  I was not hysterical.  I was not scared.  Just calm and clear.  “Children, I need your help RIGHT NOW!”. 

And this is where I learned that despite her growth and her progress, I cannot yet count on Elizabeth in a crisis.  She turned pale, turned around immediately and disappeared as far away from me as she could in the house- back in the back corner- where she waited it out. 

Ray, to his credit, stood there and asked for directions with an attitude that only a pre-teen can do.  “Yea.  What?”  He cut surgical tape in pieces for me- throwing away one that was minisculely too short to his eyes, and watched while I wound it around my finger.  I complimented him on his level-headedness.  ”Is that all?” he growled, and went back to his computer game. 

I looked at my gauze-wrapped finger again, and saw that the blood on the pad that I was applying pressure on so firmly was becoming soaked again.  I called my mother- because somehow Mother always knows how bad the hurt is even from a distance.  And so I called James and asked him to come home and take me to Urgent Care.  I turned off the oven.  At Urgent Care, I got lectured on the proper use of knives and that yes, it did need stitches because it was on the knuckle and it was deep, and I began to realize how very, very lucky I was not to lose the finger.  Or cut a nerve.  It hurt, and it needed stitches and it was large and ungainly, but it was still there.

Only, I couldn’t type very well.  I type- a lot.  I type my lesson plans.  I type my lectures onto Power Point slides.  I type on my book and I type to look up recipes.  I type to stay on Facebook and I type to stay in touch with my children’s teachers.  I could sortof type 9-fingered, but it was slow and it was awkward and you make a lot of typos typing 9-fingered.  A lot of typos.  And so, I’ve been hampered all week with my lack of communication.  I’ve let the blog slide and haven’t been on Facebook for a while.  I never realized before how my typing allows me to communicate- to plan- to think- to organize my thoughts.  I’ve been disjointed all week.  I’ve felt isolated. 

Tomorrow I get my stitches out.  Today, I took off the bandages and can move my finger freely and, other than a little pulling, with little pain.  And today, I can type again.  With full appreciation of how important even a finger is to keeping connected with the world.  And I have a far greater appreciation of my own fingers and how difficult it is for others with much, much greater communication issues. 

Elizabeth, with her own communication issues, who was so panicked that she couldn’t help me, has now decided that she’s afraid of knives- to the point of shrinking away from that part of the counter where they are kept and staying away from the dishwasher where they are washed.  This weekend, she moved her chair away from the knife we were using to cut the pizza (even healthy eating needs a break).  She has informed me that she will be having a private chef when she’s a grownup, so that she doesn’t have to work with knives.  She’s creating a phobia right before my eyes. 

I plan to start her rehabilitiation- right after mine.  I think that once my stitches are out and my finger less Frankenstein-y-looking, she’ll be better and I can start to work with her.    A little fear and healthy respect- respect that I regained- is a good thing.  Too much is disabling.  I plan on offering her a little steak in a few weeks- her favorite meal- and do a hand-over-hand therapy session.  Applied Behavior Analysis at its best…

And for the record, we ate the spaghetti squash dish the next day and it was delicious.

February 5, 2011

Piranha Bites

Filed under: Home Things — profmother @ 11:40 am

Did you know that when a piranha bites you, it only bites once?  One piranha bite does not kill, and from what I’ve heard, it doesn’t even really hurt much, other than a gash.  But a swarm of them attacking can turn a full-grown cow into an instant skeleton.  It’s not the size of one; it’s the volume of many that leads to collapse.  This week- no major crisis.  But a whole heck of a lot of piranha bites.

Saturday: Car blows up

Sunday: We owe money in taxes.

Monday: Cat gets an infection; has to go to vet for small surgery

Tuesday: Buy a new car we hadn’t budgeted for

Wednesday: Elizabeth develops tendonitis in her heel and is on crutches

Thursday: Hot water heater dies

Friday: Missed my book deadline.

It may be south Georgia with no snow, but the stress- it’s a’piling up pretty high around here.  No “crisis” that can’t be dealt with, but lots of dealing with this week.

Ray is on edge, and I’m about to follow him over it when he goes over it.  I feel the nips of the piranha…

February 1, 2011

Life is What Happens When You’re Busy Making Other Plans

Filed under: Home Things — profmother @ 9:19 pm

On January 29, we looked at our finances, our stability (we’ve been here two whole years in May!), and realized that maybe… maybe with a lot of scrimping and saving and extra jobs, we could spend part of our summer vacation in England.  For free in the house of Vicki’s uncle who has  3 extra bedrooms.  In ENGLAND!  The SUMMER! (Or at least in July).  We started dreaming- Stonehenge.  Tower of London.  The Eye.  The Cotswolds.  ENGLAND!  Elizabeth started talking about a day trip to Paris.  PARIS!

On January 30, my husband’s car- the 12-year old faithful blue Honda that had only once given us any fits (a new radiator in December) died.  And died spectacularly by stalling on the causeway.  He had it towed to the mechanic where she was pronounced Dead On Arrival- a blown head gasket that blew the timing belt.  Not just “mostly dead”, but “all the way dead”. Dead.  Deader than a doorknob.  Scrap metal.

And so I Googled.  I read up on cars.  I looked at options.  I ran numbers and options through my head like a hamster on a wheel. I stayed up late and I slept badly.

On February 1, we bought a new car- a hybrid Honda Civic.  A car we need.  A car we’re excited about (40mpg gas mileage!).  We have to have another car, and we’re deeply fortunate enough to have a job to even get a car.  But a car that destroyed our dream of Summer in England.

On the one hand, I’m deeply grateful that the faithful blue Honda did not die six months ago when things were tighter.  I’m deeply, deeply grateful that it did not die a year ago when it would have been impossible to get a car at all.  I’m very, very, very grateful that we have mostly the means to buy a car at all.  I am truly aware of and appreciative of the fact that we have such a great car (40mpg!).  I am deeply aware of how unbelievably lucky we are to have a job and stability and all of those things that we didn’t have for so long.

But it does mean that I am going to have to try to find a part-time something in addition to our two full-time jobs and our two part-time consulting- pick up a class for another college, or even work at the movies.  It does mean that our already stretched time and income gets a little thinner.  It means that the stress level goes back up to where it has been for far, far too long- where we’re operating in crisis mode- again.   This ain’t even close to autism, but autism laid down the familiar tracks of crisis that we know all too well.

I should be used to this by now… but every time, it’s a surprise.  The universe saw that we were making one set of plans, and decided that no, no we’re not ready for those dreams to come true yet.

 

 

 

January 27, 2011

Son of Professors Blog… coming soon

Filed under: Home Things — profmother @ 11:02 am

Well, I’m still working on finding a tutor- but his blog is set up, and that’s ready to go- other than the fact that I don’t have time to help him actually write it today.  I have a research meeting this evening, followed by a parent presentation about… autism. 

Ahhh… the irony.

January 24, 2011

UGHs

Filed under: Home Things — profmother @ 6:17 pm

Elizabeth has a new project.  After successfully saving enough money (with some carefully engineered projects by Mama) to go to Harry Potter World for New Years, she wanted a new project.

Her choice- Ugg boots.  Boots that, to my mind, are some of the ugliest things on this earth.  I get the whole comfort thing.  I get that they’re warm.  We live in Southeastern Georgia, where the natives start breaking out the hot chocolate at 50 degrees and no one has an ice scraper.  I showed my neighbor this morning that a credit card edge will work as an emergency frost scraper- she didn’t know. But boots that provide heat insulation are not really an issue around here.

I grew up in snow country.  I grew up in Southern Colorado where to my child’s mind, a good snow fall meant “bungling up” in multiple layers, sledding down the hill that my mom had made a path with snowshoes on, and then inside for hot chocolate and snow ice cream.  Snow days were great!  They were not so great the years we lived in Pennsylvania and Rhode Island when I had to bundle up to dig out the walkway, the drive way, and the sidewalks and then when I had to be the one to break ground for the children to sled.  Where by the time the children were dressed in all of their layers, they were ready to come back in.  Boots?  I yearned for the days of flip flops and sandals.  Boots were necessary evils.

And so, my daughter, who lives in a place where we can wear flip flops 11 months of the year, wants boots.  And not just any boots- hot pink boots that will get dirty in any adverse weather.  But boots that have the UGG label on the “ohhh look at the cute button” button.

And she’s willing to work for them- hard.  She took on the list of household chores- no tv, reading, washing dishes, and making her bed.  She added and re-added her daily figures to determine that it would take her until March 18th to earn the $110 she needed for these boots.

But it’s looking like it might be earlier.  On the list we devised of “Ways to earn money” was “clean the dog yard”- a task we all hate and one that I hoped would have fixed itself in the months since it last got done.  It hasn’t. There was quite a lot of, shall we say, dog droppings on the ground.  We decided that cleaning the yard would earn the princely sum of $6- $7 if she did it without complaining and all at once.

Saturday morning found Elizabeth outside in her pajamas, before her morning shower, cleaning the dog yard- scooping and placing the “droppings” in the plastic bag, and scooping some more.

Ray?  Ray stayed inside and watched her.  “Ugh.  No way I’m doing that,” he informed me.  “Then I guess you’re not getting your new Lego set anytime soon, huh?” I told him.  “Nope,” he replied, completely unaffected by my use of the not-so-subtle sibling rivalry.

When our friend Kristen came over- very pregnant and with her very large dog to play with ours- she was most admiring.  “Wow, I’ll pay you $20 to clean up my yard,” she offered.

“Ray?” I asked, extending the offer to him to boost his fund considerably.

“Ugh, no way,” he repeated from the morning.

“Ok!” Elizabeth accepted.

When I think of my child who gags at bad smells, who HATES being around slimy textures, and who really is not fond of hard physical work, I realize just how motivated she really must be.

I can’t help but roll my eyes- and be really proud of her at the same time.  Elizabeth is prepared to go through an awful lot of “Ugh’s” for these Uggs.


January 21, 2011

PANDAS and Pots

Filed under: Exceptionality issues,Home Things — profmother @ 4:31 pm

Today… is better.  Not great.  Not anywhere close to “fabulous”, but certainly better.  My pot o’mothering may be cracked, the leaking has subsided. 

There were two things that came out of my post, though…

The first thing is an amazing resource I want to pass on.  A reader emailed me and asked if we had ever considered looking into the possibility of PANDAS as a label for Ray?  Here is the site at the NIMH… (Go ahead, read it- it’s GOOD!)  PANDAS stands for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections and is essentially all of the symptoms of Tourette’s, anxiety and much of what plagues my son. 

We HAD checked out PANDAS before, and the major issue is that Ray’s issues were not “sudden onset”- in fact, many of them were things that he literally was born with (As in, I noticed them from the time he was placed in my arms- eating has been an issue literally his whole entire life).  His symptoms for Tourette’s crept up on us until we noticed it when he was three and asked the doctor about it when he was four, and got diagnosed when he was six.  Add that to the fact that my father and brother both had Tourette’s… and well, he’s got Tourette’s.  Not severe.  Not unmanageable- most of the time.  But noticeable and an issue.  He’s flirted with several labels over his little life so far (ADHD, OCD, ODD, PDD-NOS- a whole alphabet of doctor visits), and Tourette’s and Generalized Anxiety Disorder- Not Otherwise Specified (GAD-NOS) are the ones we’re living with right now.  So… not PANDAS.  But I did figure that someone could use this information- someone looking for help, someone doing a Google search, might come across this blog and get pointed to the web site.  And we have noticed that he gets worse when he gets sick- consequently, we really focus on Vitamin C and zinc around our house. 

So, if you Google “panda” and “mother blog”, you just might get this one… or this blog here.  Depends on the type of panda you’re looking for.

*****

The second thing to come out of that blog is much more disquieting.  I can see what Google search strings led people to my blog- interesting feature of WordPress.  One of the Google searches that was done yesterday was “I just can’t take my son’s Tourettes anymore“.  Just reading that string of words, and knowing that there was someone who had typed those words into the Google search box- looking for answers, looking for support, looking for… something.  You can sense her (I’m assuming it’s a her?) frustration, her anger, her pain and her feeling of being at the end of her rope.  I have no way of knowing if she commented, if she read anything, or if she moved onto something else.  I hope she found something to help. 

But to her, and to all of the other parents out there- I just want to validate that this sucks.  It really, really sucks.  I might be very, very lucky to have a degree in this, and to have had experience in teaching all kinds of kids.  I have excellent resources at my disposal;  I have lots of answers; I have lots of strategies.  But I don’t get to walk away from this.  I don’t get to find the magic pill/strategy/idea to make this all go away.  I don’t get to cure this.  All of us mommies (and daddies) out here in Autism/Disability/Exceptionality Land, we live this, every day.  Professors, therapists, doctors, web pages, and books have lots of ideas about how to make some things better- but next month, tomorrow, heck- by the time Ray’s finished playing his Wii game he’s on right now- that temporary answer/solution/strategy may not be working.  And our job is to find another professional, another web page, another book, and try something new again.  Or do something we stopped a while back and do that again.  Or just keep doing what we’ve been doing and give it more time. 

And as we do that, we might cry.  We might whine.  We might leak.  We might not handle things the way the books, the web pages, or the professionals told us to.  And our job- that we didn’t sign up for, that isn’t fair, that really, really sucks- is to keep trying. 

Because we love them.  Because we know that without us, they have almost no chance at all.  Because we have the strength to go on.  We get that strength from community with other parents, from resources, and from the moments when your child shows you that you are at the center of his being. 

Last night, after two days of storming, Ray turned over in his bed as I was leaving and said “I really love you, Mommy.”  And just like that, the deep crack in me sealed itself- and I was strong again. 

For now. 

Until the next time, when I will cry, I will hate his Tourettes again, I will not behave as I, a professional, would recommend.  And I will go and find the help I need.  Please, Google Searcher, keep searching.  Help and support are out there.  We’re here for you…

January 3, 2011

Bridging the New Year

Filed under: Autism,Home Things — profmother @ 9:18 am

Jekyll Bridge at Sunset

At the stroke of midnight on New Year’s Eve, we were heading up the Jekyll Bridge- a glorious, wondrous thing that is the highest point around here in this coastal plain.  From atop the bridge, you can see the chain of island, the marsh- and its everchanging tides, the port and its busyness, the paper mill and its pollution, and you can see the ocean. You can see it all- the beauty and the degradation, the vastness and the constant changing nature.  It literally takes your breath away- up on top of the Jekyll Bridge.

We hadn’t planned to be on top of the Jekyll Bridge.  We had planned to stay with our friends in Orlando after a long day at Harry Potter World and the Islands of Adventure.  We had planned to watch the fireworks at Universal.  But after an exhausting day of crowds, noise, and waaaayyyy too much stimulation, our friend’s mother was ill and I was not feeling all that well and you cannot get a hotel room on New  Year’s Eve at the last minute- so we headed for home.  Home and our own beds.  We knew we wouldn’t make it home  by midnight, but I was curious where we would be.

And so we drove on in the dark, listening to music, making light conversation- Elizabeth asleep in the back, Ray taking seriously his job of “Must keep the driver awake” by chattering. It was a light, quiet moment- one that was much appreciated after a day of barely holding it together.  Elizabeth, my sensory-seeking darling, was in her element- she rode every ride; she wandered through the streets barely able to focus on us as the Marvel comics, cartoon characters and crowds attracted her attention.  And she crashed as soon as she got in the car.  Ray… Ray held it together simply because his attention kept being distracted.  He would start to melt down and we would feed him, or we would whisk him away to another activity… Spiderman saved the day on several occasions.  He was so glad for the comfort of the quiet, dark car.  We were all glad for the comfort of the quiet, dark car. 

I drove home- steady speed- perhaps a little fast, since I drive fast- but not too fast.  I had my eye out for crazies, drunks, and other people who are out driving around close to midnight on New Year’s Eve.  And I watched the clock tick down.  As the bridge and midnight grew closer, I thought, “I wonder… Nah.  What are the chances?”  I did not change my speed; I did not stop; I did not alter a thing.

As the clock turned over 12:00, we started up the ramp.  As the clock turned 12:01, we were coming down the other side.  At the midpoint of the midnight, we were on top of the bridge.  At the stroke of midnight, from atop the bridge on New Year’s Eve, you can see the first fireworks from both St. Simons and Jekyll Islands- dual celebrations of light framing the horizon.

I’ve been mulling ever since- what could/might it mean? It felt meaningful.  It felt amazing.

Are we bridging from one time frame of our lives to another?  Are we not quite from here, but not quite from anywhere?  Are we starting a year of transition?  Was this minute given to us to reflect and to ponder and to appreciate the time and the place and the moment? 

I’m not sure, but I lost my breath in appreciation at the perfection of the universe to put us in that precise place at that precise time.  We may not know where we’re going at any given moment, but clearly, we’re where we’re supposed to be. 

And at midnight, on New Year’s Eve, that was on the bridge. 

And yes, we are SO buying a print of the bridge to hang on our wall to remember New Year’s 2010.

December 31, 2010

New Year’s Resolution

Filed under: Home Things — profmother @ 1:21 pm

I have only one resolution this year…. Get more sleep.

It may sound like an odd resolution- I haven’t seen it up there with “lose weight… spend more time with family.. save more money” that have made mine- and many other’s- lists in years past.

I would like to plan to lose weight, organize my closet, finish that book, write that grant, be more patient, cook healthier meals, but the reality is that I can do all of that- if I get more sleep.

When I get enough sleep, I am a better mother.  A better wife.  A healthier, happier me.  More productive at work.  Overall, life is just better when I sleep.

So, why? you might ask… why don’t you get enough sleep?

Because… because the list of things to get done never ends.  Because I work all day long and then come home all evening where I make dinner, deal with homework, deal with various hysteria of the day, deal with laundry, deal with after-school sports, deal with finishing a project from work that has to be finished and deal with the pets.  This doesn’t include I deal with autism and attention deficit and Tourette’s and anxiety and depression- not all of these located exclusively within the children.

And I do have help with all of these- my husband does a fair amount of all of this.  If not for him, the house would never be vacuumed and our laundry would never be done- and let’s not talk about the trash.  He certainly works as well.

But it is an inescapable fact that while he is a foot solider in the daily battles of our life, I am the general.  I keep track of what gets done when and when we need to buy more cheese and when to replenish the children’s lunch money.  We have  a calendar on our refrigerator that I maintain.  I have the schedules of the four of us, the college, the school system, the needs of the pets, and who goes where when all in my head.

Add to this rather typical busy life a husband who is leading the college through accreditation and various reports that are due- and a book draft of mine due at the end of January and a research project underway- and well, we’re busy.  Our life is an amalgam of disability and giftedness.  We have pediatric neurologist appointments (end of January) scheduled right after a weekend of Georgia Tech’s science camp that overlaps with a chess tournament.

It’s not terrible.  It’s pretty ordinary- with a twist or two.  But it would be helped if I could get more sleep.

Because you see, after I tuck them into bed- a 45-minute and 37-step process for Ray- and clean up after dinner and throw a load of laundry in and finish grading, I am so frazzled and drained that I stay up.

It’s quiet in our house from 10:00 on.  The children are asleep.  My husband is asleep.  Heck, even my dog is asleep.  And that silence is nurturing, healing.  I don’t appreciate silence in the morning as much- the silence at 5:00am (not that I’ve seen it much, but once in a while, I blunder into it) is filled with potential- with the pressure of what has to get done that day.  It’s filled with energy and lists.  5:00am silence is ready for action.

10:00pm quiet is relaxing.  It’s curl-yourself-up-in-the-couch-with-a-good-book kind of silence.  It’s cozy and it’s healing.  It’s my time- my time to unwind, to reconnect the dots of my fragmented personality.  It’s the time of appreciation and still.

But 10:00pm quiet leads into 11:00pm silence, which is a blink away from midnight stillness.  By midnight, I’m falling asleep over the book and I drift, connected-ME again- off to sleep.  Only to wake groggy at 6:00am, with that list pressing down on me, that energy of things I gotta get done.

And that tiredness dogs me all day long.  It distracts me at work; it makes me cranky.  It makes me less able to deal with the tantrums, the drama, the trying-to-figure-out-what-she’s-trying-to-say.  It means that I stare at that blank computer screen that is supposed to turn into Chapter 4.  It means that we have macaroni and cheese, once again- for dinner because I forgot to buy whatever-it-was we needed for something else.

So after a long, fractured day, I relish that 10:00pm quiet.  I feel my scattered attention and anxiety drain away in the quiet.  I feel back to me again in the quiet.

But I gotta go to bed before midnight.  I gotta find a way to find quiet before 10:00pm.

And so- my New Year’s resolution is to get more sleep.  Because if I get more sleep, all of the rest of can happen too.

December 22, 2010

Adding a Tradition

Filed under: Home Things — profmother @ 7:48 am

We’ve added another tradition to our Christmas this year.  It’s part of our recipe for the holidays.

Start with two children with anxiety issues- autism, Tourette’s, giftedness.  Add in some parents with anxiety issues of their own.  Blend together moving lots of times and lots of houses- 8 houses in 10 years.  Sift with some old family items and all together you get a regulated set of traditions that help establish “THIS is how we celebrate the holiday”.  And we love them- we all love them.

We start the season on December 1st with the Advent Box- a box that marks down the 25 days until Christmas.  Every day, they get a little something- a candy, bubbles, a little game- all around $1, except for a mug or glass I give them every year.  They race home from school and burst through the doors with eager anticipation to check the Advent Box.

Next, we celebrate St. Nicholas Day on the 6th, because he is my son’s patron saint when he was baptized.  Ray gets taken out of school for lunch that day as “religious observance”.  That’s followed up by St. Anne’s Day on the 9th, my daughter’s patron saint.  Lunch again.  He asks for McDonalds- a rare treat around here, while she classes it up with Chik-Fil-A.

On the 12th is our anniversary- which we try to spend out- away from the hubbub and the constant demands and the… all of it.  Some years we manage it.  Some years we can’t find a babysitter we trust enough to spend the night, a child is sick, or a child- normally Ray- is just too unsettled.  This year, we have Vicki and we spent it out.  A moment of peace during a hectic month.

Then, after the anniversary, we get the tree.  We do live trees around here, so I’m always nervous of it drying out too fast.  Decorating is an on-going process that gets started at the beginning of the month, but it culminates with the getting of the tree.  Every ornament is a story- a “remember when”.  We get ornaments on our travels and events, so this year, we hung the tiny St. Louis Arch and the tiny tea cup from Boston next to the gold place ornaments from Charleston, Williamsburg, the Edison House, the seal from Pier 49, the cranberry basket from Plymouth, the tiny Seattle Space Needle.  Add to that the school-made ornaments that always include a picture of a child- 2 for each year.  And occupying a place of honor is the silver Sheriff’s star that my dad used to wear and place on my childhood tree.  Our family history can be told in ornaments.  And Ray sets the angel on top- the angel that James and I bought from Walgreens our first Christmas together.

Attendance at our Christmas can also be told by the stockings.  We order individual stockings from Lillian Vernon and in addition to the four of us, one year, we have Dampa, another year we have Vicki.  We have a pile of “those who can’t be with us this year” stockings that stay in the Christmas boxes- waiting for them to return.  My mom’s says “Gran” which was the name she was “supposed” to be called, but Elizabeth, figuring out family relationships with a limited vocabulary, named her “Mamamum” (Mama’s mama). when she was two. Ever year, when we bring out the misnamed stocking, that story gets retold.

Around the end of school, we hold our annual Train Decorating party.  It started out as a cookie-decorating party when Elizabeth was six months old and my friend/doula Michelle and I got our babies together for some Mommy time too, and we decorated cookies.  It evolved when I got a cake tin that made train cars from Williams Sonoma- that could be decorated.  Every year, literally since they were born, the children invite 1-2 friends over and have an orgy of frosting, candies and marshmallows.  They start with a singular vision that invariably ends with a masterpiece pile of sugary stuff.  Each child then takes his or her own creation home.  I’m not sure what the parents feel about it- but it’s one of the ways we create activities that don’t require a great deal of social interaction but are highly sought over by other children.  The friends may shift every year, but the Train Party is a constant.

A few days before Christmas, my mom flies in from Santa Fe.  One year,when we were in Fort Myers, we rented a convertible to pick her up.  One year, when we were in Rhode Island, we inched along on icy roads.  But no matter where we are, her presence kicks the holiday up a notch to the culmination. She is the final piece to our family’s Christmas.

On Christmas Eve, we eat beans and Mexican cornbread and open presents from the family.  It’s another orgy of wrapping paper, boxes and me trying to corral things with ongoing trash bags.  Elizabeth and Ray are “Santa” and have been since she was 2 and could recognize the first letter of her name.  We taught her “M” for Mama and “D” for Daddy that year.  We can trace their reading abilities by how well they are able to distribute the gifts.

Then, there’s the humor running throughout the whole gift-giving thing- we give hints of what’s wrapped inside by the names on the packages.  ”To: Travel Buddy 1, From: Travel Buddy 2″ one year graced a framed map.  We break up parts and wrap them separately- a pajama top here and a pajama bottom there.  My dad used to wrap in comic paper and top with “bows” of household items (one year, there was a screwdriver on top of my present), but we have tended to stick to regular wrapping in my own family because Ray doesn’t get that humor and was very angry one year when he couldn’t keep the potholder on top of his gift.

On Christmas Morning, Santa comes- and Santa doesn’t wrap.  The children are then required to come and wake us up first- and no earlier than 6:00- so that we can document their faces when Santa brings their heart’s desire. One year, it was a tricycle; one year it was a Baby Alive; last year, Ray got a drum set.  Some years are leaner than other years for regular gifts- but Santa almost always delivers the one thing they’ve been wanting.  Ray tends to get overwhelmed and will grunt and cry.  He holds it together all during this string of traditions- but Santa’s coming is typically the final straw for him.  Hey, not all traditions are planned or wanted.  I try not to let it ruin the moment for me- but it’s always hard when we’ve had such perfect run up to the holiday itself.

After the inevitable tantrum, I make an extravagant breakfast- apple pancakes, lemon something or other… If we’re close to a Greek Orthodox church, we will go to service that morning. We come home in our dress up clothes and then organize the baking of the Christmas dinner.  We use the china from my grandmother that has survived every move, and the sterling silverware if we can find it.  It was “in a box” for about three moves.  But this year, we have found it, and so this year, we have the sterling.  We gather around our table, we light the candles, we take a deep breath, we say a prayer of gratitude and we eat.  Some years, it’s awful; some years it’s good.  But it’s a production, whatever it is.  And it’s almost always late, despite our best intentions.

By the time we clean up, we’re all tired.  The children are tired, overwhelmed and getting them to bed is not normally a problem.  Then, because we’re all tired of the overwhelming sweetness, the grownups watch some atrociously foul grownup movie.  One year it was “Die Hard”; one year it was “Bad Santa”, and this year, it will be “Get Him to the Greek”.  Nothing like lots of cursing to clear away the sweetness that has become cloying by this time.

And this year, we’ve added another bead to our necklace of traditions.  Yesterday was the last day of school.  Elizabeth and Ray, knowing that I’m a sucker for a tradition, asked to sleep under the Christmas tree last night.  ”We can make it a tradition for our last day of school!”  As I watched their faces with the lights twinkling last night, I valued the moment.  I relished that they are 8 and 9 years old and that they still believe in Santa.  I loved the hubbub that Christmas is with children.  I know that this time is fleeting.  I don’t look forward to Christmas when the children are grown and there are no small children to squeal over Santa.  These are the Christmases we will forever remember as “Christmas”.

We don’t do much for New Year’s.  Thanksgiving is ok.  The other holidays- we do stuff.  But Christmas… Christmas is the time of joyous excess, of connecting us with tradition with family.  Christmas is… joy.   And so, yes, we have a new tradition.

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